Thursday, March 01, 2012

Slate writer says she would have killed her son if she had known that he was going to be so flawed

Rick Santorum, Meet My Son He has a degenerative disease that has left him blind, paralyzed, and increasingly nonresponsive. If I had known before he was born, I would have saved him from suffering.
I don't regret a single minute of this parenting journey, even though I wake up every morning with my heart breaking, feeling the impending dread of his imminent death. This is one set of absolute truths. Here's another: If I had known Ronan had Tay-Sachs (I met with two genetic counselors and had every standard prenatal test available to me, including the one for Tay-Sachs, which did not detect my rare mutation, and therefore I waived the test at my CVS procedure), I would have found out what the disease meant for my then unborn child; I would have talked to parents who are raising (and burying) children with this disease, and then I would have had an abortion. Without question and without regret, although this would have been a different kind of loss to mourn and would by no means have been a cavalier or uncomplicated, heartless decision. I'm so grateful that Ronan is my child. I also wish he'd never been born
article here A Christian report on this article, here.

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